As a parent or caregiver of an adult with disabilities, you hold a world of knowledge about your loved one — from their daily routines and medical needs to their hopes, fears, and joys. Caring to Care was created to help you record and share this vital information, ensuring continuity and compassion in your loved one’s care, today and tomorrow.
This is a two-part resource:
The Book: gentle support, practical tools, and stories to guide you through the process.
The Blank Guide: a blank, customizable workbook where you can document the details that matter most. Once completed, this is your Caregiver’s Guide.
Together, they help you transform worry into readiness.
Writing about your loved one’s life, care, and future can feel daunting — but it’s one of the most powerful gifts you can give.
Caring to Care walks you through the process with empathy and clarity.
Step-by-step prompts and reflection questions
Real examples and caregiver insights
Encouragement to begin, even if it feels hard
This blank guide is designed to help you record the practical and personal information others will need to care for your loved one.
Inside, you’ll find space for:
Medical information
Daily routines and preferences
Finances & legal notes
Social connections, values, and goals
Levels of knowledge and skills
And much more!
A heartfelt welcome and overview of how Caring to Care can help you create a meaningful, practical caregiver’s guide
Capture the essence of who your loved one is — their personality, preferences, and what brings them joy.
Record essential health details, medications, and medical history to ensure consistent, informed support.
Document daily rhythms and rituals that bring comfort, familiarity, and stability to your loved one’s life.
Outline key financial, insurance, and legal information to help future caregivers manage responsibilities with confidence.
Reflect on hopes, values and wishes of and for your loved one and outline any specific arrangements that you may have in place
Caring to Care is an outstanding resource that helps families capture unique insights about their loved ones in a clear, user-friendly format. As a physician with experience supporting individuals living with developmental disabilities, I’m certain this tool will enhance health and quality of life. It includes essential details for smooth transitions and comfort—information that might otherwise remain unknown to caregivers when you’re not present.
Even though I have known [my friend’s] daughter for many years, the Caregiving Guide provided me with helpful insight into her thoughts, needs, and actions. The background enabled me to better understand her daughter, and to act and respond appropriately so that she was comfortable, calm, and safe. The Caregiving Guide is an essential document for anyone responsible for a special person.
Based in Kitchener, Ontario, retired teacher and lifelong educator, Ann Callon, has dedicated her life to helping others learn and connect. As a mother to Erin, who has Down Syndrome, Ann experienced firsthand the need to document what only caregivers know. Her experience — and Erin’s simple but profound question, “Mum, what happens to me when you and Daddy are gone?” — inspired her to write Caring to Care. This heartfelt resource was created to help families capture the details that ensure their loved ones are cared for, with compassion and confidence, always.
